NZAPA was formed with the support of consultant physicians of UK NHS National Amyloidosis Centre (NAC), UK Amyloidosis Advisory Group (UKAAG), Dr Hugh Goodman, Haematologist / Clinical Director Haematology, Waikato Hospital Hamilton & Dr Simon Gibbs, Consultant Haematologist and Director of Victorian and Tasmanian Amyloidosis Service, Australian Amyloidosis Network. A special mention goes out to Professor Dr Ed Gane (NZLTU) whose dedication and innovative work has contributed to the development of a cure for Hepatitis C and now supports us in our cause.
We are a registered and incorporated charity (CC57385) under the NZ Charitable Trust Act 1957 and the Charities Act 2005, formed to provide NZ patients, their family and friends with resources to help no matter what the stage of the disease. There are good reasons for optimism and it is important to remember that you are not alone.
What We Do
From our own personal experience with the disease we recognise that wholesome support for the total wellbeing of Amyloidosis patients and their carers are lacking here in NZ. By creating a forum platform, we hope to generate awareness about the disease in this country so that our voice too can make a difference and impact accessibility for treatment.
We need your support by coming alongside us to make a difference. Standing together as one can change outcomes to this debilitating disease. You are not alone in this struggle to survive. There are solutions out there and we must bring it to our shores here in NZ. Contact us to learn how you can make a change or donate to the cause.
Eidos AG10 ATTR-CM drug trial recruitment are underway in NZ
Please contact Dr Tim Sutton (email@example.com) or Dr Hugh Goodman (firstname.lastname@example.org)
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