2020 – NZ Amyloidosis Patients Association (NZAPA)

INFO

How My Pacemaker Contributed to Hypotension and Pedal Edema

September 24, 2020September 24, 20201 min read

“Pacemaker syndrome” is something which we chanced upon through a series of health mishaps that led to my collapsing in a chiropractor clinic one day

INFO

Genetic Discrimination: Insurance Policies

September 18, 2020September 24, 20206 min read

As a patient association, an important aspect of our advocacy work is to encourage those with a known history of family members carrying the

INFO

Gene Editing; A Promising Hope For Amyloidosis Patients If Proven A Success

June 9, 2020September 24, 20202 min read

Genetic engineering technology by itself is nothing new and have been around since the 1970s. Fast forward to 2020, the technology has now evolved and

INFO

Part 2:The A to Z on Amyloidosis (Heart, Nerves, Nervous System, Ocular, Latest Technology, Therapy)

June 7, 2020September 24, 202022 min read

(Amyloidosis Support Group, October 2019, Conference Notes) Heart Our heart consists of millions of muscle cells making it beat. Amyloid gets between the cells, making

INFO

Part 1 The A to Z on Amyloidosis (Terms, Diagnosis, Types, Treatment, Genetic & Gut)

June 7, 2020September 24, 20208 min read

(Amyloidosis Support Group, October 2019, Conference Notes) Diagnosis Terms Amyloidosis = Protein folding disorder TTR = transthyretin: Transports thyroxine (a thyroid hormone) and retinol (vitamin

Uncategorized

Amyloidosis: Do Doctors Know To Look Out For It?

May 31, 2020May 31, 20202 min read

Amyloidosis is a tricky prankster in that as a disease, the manifestation of it often goes under the radar as each organ effected can disguise

Uncategorized

Cardiomyopathy in TTR Amyloidosis by Professor Julian Gilmore (May 13, 2020)

May 25, 20202 min read

When a patient is diagnosed with amyloidosis, the care of that patient often brings in a multifaceted and multidisciplinary type of involvement of medical experts

Uncategorized

Neuropathy in TTR Amyloidosis by Professor Mary M. Reilly (May 13, 2020)

May 25, 20202 min read

TTR Amyloidosis disease is slowly gaining recognition particularly in New Zealand but in overseas countries such as in America and Europe, research work have been

Uncategorized

Caregiver: A Guide To Selfcare

May 6, 2020May 25, 20202 min read

As caregivers, we should not overlook the physical, mental and emotional toll when caring for our loved ones with Amyloidosis. The best remedy for us

COVID-19

Covid-19 Symptom Online Checker

March 23, 2020March 23, 20202 min read

We are providing you a COVID-19 symptom checker link for you to be able to assess and identify the risk you presently are in with the possibility of being exposed to this highly contagious virus.

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Acceptance of any contribution, gift or grant is at the discretion of the NZ ATTR Amyloidosis Patients Association (NZAPA). The NZ ATTR Amyloidosis Patients Association (NZAPA) will not accept any gift unless it can be used or expended consistently with the purpose and mission of the NZ ATTR Amyloidosis Patients Association (NZAPA).

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Certain other gifts, real property, personal property, in-kind gifts, non-liquid securities, and contributions whose sources are not transparent or whose use is restricted in some manner, must be reviewed prior to acceptance due to the special obligations raised or liabilities they may pose for NZ ATTR Amyloidosis Patients Association (NZAPA).

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The NZ ATTR Amyloidosis Patients Association (NZAPA) will respect the intent of the donor relating to gifts for restricted purposes and those relating to the desire to remain anonymous. With respect to anonymous gifts, the NZ ATTR Amyloidosis Patients Association (NZAPA) will restrict information about the donor to only those staff members with a need to know.

The NZ ATTR Amyloidosis Patients Association (NZAPA) will not compensate, whether through commissions, finders' fees, or other means, any third party for directing a gift or a donor to the NZ ATTR Amyloidosis Patients Association (NZAPA).

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Year: 2020

How My Pacemaker Contributed to Hypotension and Pedal Edema

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Genetic Discrimination: Insurance Policies

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Gene Editing; A Promising Hope For Amyloidosis Patients If Proven A Success

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Part 2:The A to Z on Amyloidosis (Heart, Nerves, Nervous System, Ocular, Latest Technology, Therapy)

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Part 1 The A to Z on Amyloidosis (Terms, Diagnosis, Types, Treatment, Genetic & Gut)

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Amyloidosis: Do Doctors Know To Look Out For It?

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Cardiomyopathy in TTR Amyloidosis by Professor Julian Gilmore (May 13, 2020)

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Neuropathy in TTR Amyloidosis by Professor Mary M. Reilly (May 13, 2020)

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Caregiver: A Guide To Selfcare

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Covid-19 Symptom Online Checker

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