INFO – NZ Amyloidosis Patients Association (NZAPA)

INFO

How My Pacemaker Contributed to Hypotension and Pedal Edema

September 24, 2020September 24, 20201 min read

“Pacemaker syndrome” is something which we chanced upon through a series of health mishaps that led to my collapsing in a chiropractor clinic one day

INFO

Genetic Discrimination: Insurance Policies

September 18, 2020September 24, 20206 min read

As a patient association, an important aspect of our advocacy work is to encourage those with a known history of family members carrying the

INFO

Gene Editing; A Promising Hope For Amyloidosis Patients If Proven A Success

June 9, 2020September 24, 20202 min read

Genetic engineering technology by itself is nothing new and have been around since the 1970s. Fast forward to 2020, the technology has now evolved and

INFO

Part 2:The A to Z on Amyloidosis (Heart, Nerves, Nervous System, Ocular, Latest Technology, Therapy)

June 7, 2020September 24, 202022 min read

(Amyloidosis Support Group, October 2019, Conference Notes) Heart Our heart consists of millions of muscle cells making it beat. Amyloid gets between the cells, making

INFO

Part 1 The A to Z on Amyloidosis (Terms, Diagnosis, Types, Treatment, Genetic & Gut)

June 7, 2020September 24, 20208 min read

(Amyloidosis Support Group, October 2019, Conference Notes) Diagnosis Terms Amyloidosis = Protein folding disorder TTR = transthyretin: Transports thyroxine (a thyroid hormone) and retinol (vitamin

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Acceptance of any contribution, gift or grant is at the discretion of the NZ ATTR Amyloidosis Patients Association (NZAPA). The NZ ATTR Amyloidosis Patients Association (NZAPA) will not accept any gift unless it can be used or expended consistently with the purpose and mission of the NZ ATTR Amyloidosis Patients Association (NZAPA).

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The NZ ATTR Amyloidosis Patients Association (NZAPA) will not compensate, whether through commissions, finders' fees, or other means, any third party for directing a gift or a donor to the NZ ATTR Amyloidosis Patients Association (NZAPA).

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