INFO – NZ Amyloidosis Patients Association (NZAPA)

INFO

How To Be Heard At The Doctors; Patient Voice Matters

December 21, 20204 min read

The effectiveness of in-clinic, or virtually these days, visits to your doctor rests in your ability as a patient to make your doctor LISTEN and

INFO

CRISPR/Cas9 Genome Editing Technology

December 3, 2020December 3, 20201 min read

HOW CRISPR/ Cas9 Works Video “CRISPR/Cas9 genome editing can make permanent, precisely targeted changes in patients’ chromosomes and repair the underlying genetic mutation, whereas more traditional

INFO

How My Pacemaker Contributed to Hypotension and Pedal Edema

September 24, 2020September 24, 20201 min read

“Pacemaker syndrome” is something which we chanced upon through a series of health mishaps that led to my collapsing in a chiropractor clinic one day

INFO

Genetic Discrimination: Insurance Policies

September 18, 2020September 24, 20206 min read

As a patient association, an important aspect of our advocacy work is to encourage those with a known history of family members carrying the

INFO

Gene Editing; A Promising Hope For Amyloidosis Patients If Proven A Success

June 9, 2020September 24, 20202 min read

Genetic engineering technology by itself is nothing new and have been around since the 1970s. Fast forward to 2020, the technology has now evolved and

INFO

Part 2:The A to Z on Amyloidosis (Heart, Nerves, Nervous System, Ocular, Latest Technology, Therapy)

June 7, 2020September 24, 202022 min read

(Amyloidosis Support Group, October 2019, Conference Notes) Heart Our heart consists of millions of muscle cells making it beat. Amyloid gets between the cells, making

INFO

Part 1 The A to Z on Amyloidosis (Terms, Diagnosis, Types, Treatment, Genetic & Gut)

June 7, 2020September 24, 20208 min read

(Amyloidosis Support Group, October 2019, Conference Notes) Diagnosis Terms Amyloidosis = Protein folding disorder TTR = transthyretin: Transports thyroxine (a thyroid hormone) and retinol (vitamin

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Acceptance of any contribution, gift or grant is at the discretion of the NZ ATTR Amyloidosis Patients Association (NZAPA). The NZ ATTR Amyloidosis Patients Association (NZAPA) will not accept any gift unless it can be used or expended consistently with the purpose and mission of the NZ ATTR Amyloidosis Patients Association (NZAPA).

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The NZ ATTR Amyloidosis Patients Association (NZAPA) will accept donations of cash or publicly traded securities. Gifts of in-kind services will be accepted at the discretion of the NZ ATTR Amyloidosis Patients Association (NZAPA).

Certain other gifts, real property, personal property, in-kind gifts, non-liquid securities, and contributions whose sources are not transparent or whose use is restricted in some manner, must be reviewed prior to acceptance due to the special obligations raised or liabilities they may pose for NZ ATTR Amyloidosis Patients Association (NZAPA).

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Category: INFO

How To Be Heard At The Doctors; Patient Voice Matters

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CRISPR/Cas9 Genome Editing Technology

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How My Pacemaker Contributed to Hypotension and Pedal Edema

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Genetic Discrimination: Insurance Policies

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Gene Editing; A Promising Hope For Amyloidosis Patients If Proven A Success

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Part 2:The A to Z on Amyloidosis (Heart, Nerves, Nervous System, Ocular, Latest Technology, Therapy)

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Part 1 The A to Z on Amyloidosis (Terms, Diagnosis, Types, Treatment, Genetic & Gut)

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