National Amyloidosis Centre (NAC) Newsletter

Stay on-top of the latest development and advances in the field of ATTR amyloidosis published by the National Amyloidosis Centre, the only hub in the UK specialising in Amyloidosis and is part of University College London Centre for Amyloidosis and Acute Phase Proteins, one of the world’s leading centres for amyloid research.

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Acceptance of any contribution, gift or grant is at the discretion of the NZ ATTR Amyloidosis Patients Association (NZAPA). The NZ ATTR Amyloidosis Patients Association (NZAPA) will not accept any gift unless it can be used or expended consistently with the purpose and mission of the NZ ATTR Amyloidosis Patients Association (NZAPA).

No irrevocable gift, whether outright or life-income in character, will be accepted if under any reasonable set of circumstances the gift would jeopardize the donor’s financial security.

The NZ ATTR Amyloidosis Patients Association (NZAPA) will refrain from providing advice about the tax or other treatment of gifts and will encourage donors to seek guidance from their own professional advisers to assist them in the process of making their donation.

The NZ ATTR Amyloidosis Patients Association (NZAPA) will accept donations of cash or publicly traded securities. Gifts of in-kind services will be accepted at the discretion of the NZ ATTR Amyloidosis Patients Association (NZAPA).

Certain other gifts, real property, personal property, in-kind gifts, non-liquid securities, and contributions whose sources are not transparent or whose use is restricted in some manner, must be reviewed prior to acceptance due to the special obligations raised or liabilities they may pose for NZ ATTR Amyloidosis Patients Association (NZAPA).

The NZ ATTR Amyloidosis Patients Association (NZAPA) will provide acknowledgments to donors meeting tax requirements for property received by the charity as a gift. However, except for gifts of cash and publicly traded securities, no value shall be ascribed to any receipt or other form of substantiation of a gift received by NZ ATTR Amyloidosis Patients Association (NZAPA).

The NZ ATTR Amyloidosis Patients Association (NZAPA) will respect the intent of the donor relating to gifts for restricted purposes and those relating to the desire to remain anonymous. With respect to anonymous gifts, the NZ ATTR Amyloidosis Patients Association (NZAPA) will restrict information about the donor to only those staff members with a need to know.

The NZ ATTR Amyloidosis Patients Association (NZAPA) will not compensate, whether through commissions, finders' fees, or other means, any third party for directing a gift or a donor to the NZ ATTR Amyloidosis Patients Association (NZAPA).

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Gene Editing; A Promising Hope For Amyloidosis Patients If Proven A Success

Part 2:The A to Z on Amyloidosis (Heart, Nerves, Nervous System, Ocular, Latest Technology, Therapy)

Part 1 The A to Z on Amyloidosis (Terms, Diagnosis, Types, Treatment, Genetic & Gut)

Amyloidosis: Do Doctors Know To Look Out For It?

Cardiomyopathy in TTR Amyloidosis by Professor Julian Gilmore (May 13, 2020)

Neuropathy in TTR Amyloidosis by Professor Mary M. Reilly (May 13, 2020)

Caregiver: A Guide To Selfcare

How to Diagnose Amyloidosis for Doctors (P.Mollee, P.Renaut, D.Gottlieb, H.Goodman)

National Amyloidosis Centre (NAC) Newsletter

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