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May 29, 2022
NZ Amyloidosis Patients Association (NZAPA)

NZ Amyloidosis Patients Association (NZAPA)

Awareness, Advocacy and Support for Patients and Carers

  • Home
    • Amyloidosis; A Background
    • Neuropathy in TTR Amyloidosis by Professor Mary M. Reilly (May 13, 2020)
    • Cardiomyopathy in TTR Amyloidosis by Professor Julian Gilmore (May 13, 2020)
    • Amyloidosis: Do Doctors Know To Look Out For It?
    • 2nd European ATTR Amyloidosis Meeting for Patients and Doctors
    • How to Diagnose Amyloidosis for Doctors (P.Mollee, P.Renaut, D.Gottlieb, H.Goodman)
    • A Guide to Transthyretin Amyloidosis
    • Do You Have Amyloidosis? Signs & Symptoms for AL, Wild Type and hATTR
      • Hereditary Amyloidosis; The Autosomal Dominant Inheritance Pattern
  • Patient Information
    • Systemic amyloidosis from A (AA) to T (ATTR)
    • Managing GI Issues In Patients With Amyloidosis & FODMAP
    • To Inoculate or Not? Learn More About SARS-CoV-2 type Covid19 Vaccines
    • CRISPR/Cas9 Genome Editing Technology
      • CRISPR/Cas9 Technology For Genetic Disease; Explanation 101
      • Gene Editing Technology For Hereditary TTR Amyloidosis (hATTR) In New Zealand
      • How Intellia’s CRISPR/Cas9 Technology Works For Genetic Diseases; Explanation 101
      • Gene Editing; A Promising Hope For Amyloidosis Patients If Proven A Success
    • How To Be Heard At The Doctors; Patient Voice Matters
    • Genetic Discrimination: Insurance Policies
    • Part 1 The A to Z on Amyloidosis (Terms, Diagnosis, Types, Treatment, Genetic & Gut)
    • Part 2:The A to Z on Amyloidosis (Heart, Nerves, Nervous System, Ocular, Latest Technology, Therapy)
    • Gastrointestinal; What, How & Why
      • Enjoying Your Food
    • Amyloidosis and Your Nail-Bed
    • Wild-Type Amyloidosis; It’s More Common Than Expected
    • Treatment
      • Printable Resources
      • Video Resources
      • National Amyloidosis Centre (NAC) Newsletter
  • Carer Corner
    • Self Care
    • Caregiver: A Guide To Selfcare
  • About Us
    • Mission Statement
    • Testimonies
      • Why Patient Associations Exist
      • From My Heart to Yours
      • Tove Jensen
      • Neil Nicholas
    • NZAPA Corporate Support Policy
  • NZ Clinical Trials
    • Current Trials (NZ & Australia)
  • How to Help Us
    • Online Banking Donation
    • Giving to via Credit Card
    • Thank you for Your Giving
    • Shop
  • Contact Us
    • FAQ
    • Forum
  • Join Us
    • Registration
    • Member Login
    • Profile
    • Password Reset

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New Zealand Amyloidosis Patient Association NZAPA (CC57385) is a registered charity under the Charities Act 2005.

QUOTE OF THE DAY

“Ignorance is a progressive thinker’s enemy; acceptance, awareness, accountability and action are the tools of the informed; of people who want change and do all they can to achieve it.”- Carlos Wallace

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Australian Amyloidosis Network (AAN) invites Patients & Caregivers for a free virtual event. To register please click https://aan.org.au/.../australian-amyloidosis-virtual.../
*please note time is in Australian time zone.
Australian Amyloidosis Network (AAN) invites Patients & Caregivers for a free virtual event. To register please click HERE to register.
*please note time is in Australian time zone.

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Posts

  • February 2022 (1)
  • January 2021 (2)
  • December 2020 (4)
  • September 2020 (2)
  • June 2020 (3)
  • May 2020 (4)
  • February 2020 (2)
  • January 2020 (2)
  • December 2019 (2)
  • October 2019 (2)

Amyloidosis:Introduction, Diagnosis & Treatment of Cardiac Amyloidosis

https://youtu.be/QnnG5aG73CE
Copyright @ 2019 Amyloidosis NZ Trust. All rights reserved.
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